Do you ever feel guilty for sleeping? The other night, I was in bed and really wanted to roll over and go back to sleep. I am a night-time tester and have been since diagnosis. I know some people do not believe in a need to test at night and that is their choice. For me, night testing is not a choice but a job that I must do to keep my son safe, healthy and alive each night.
I know how important this is to me. I know that there are nights that I have woken up at unexplained times to find him low and dropping. I know that I have checked at other times and found him high or with site problems that I was able to stop before they turned into ketone issues.
I am very conscious of how “lucky” I am to be able to test my son at night. I know that there are parents who have lost their children to diabetes that would gladly take my place for a few nights.
I should be used to interrupted sleep. I have not slept through the night since the before the birth of my first son. He was a terrible sleeper who never slept through the night until he was six years old! Waking, walking, testing, and going back to sleep to do it all over again a few hours later should be habit and simple.
Despite all of that, I often feel guilty when I wake up and don’t want to get up. When I have those moments of decision–when was the last time he was tested? What was his reading? What are the odds of there being a problem right now? Do I need to test yet or can I doze off for another hour?
Sometimes those questions simply make sense. It may have been three hours since I went to bed but I know that my night owl teen has only been asleep for an hour and he normally does remember to test before he goes to bed. He also knows to tell me if there is a problem before he goes to sleep. It may therefore be safe to sleep a little while longer. Sometimes, those questions are purely selfish. My bed is warm. My body is in a pleasant state of relaxation and I really don’t want to disturb it. It’s at that point that I feel guilty.
Getting up is my job. It is not one that I would have chosen but its the role that I have been given and it is very important. My son will sleep through almost anything except the worst of highs. Some days I wish it was different but as I have said before, everyone has something to deal with. This is our “something” and honestly, the alternative is not worth a thought. So I live with the guilt of sometimes not wanting to get up. I push past it and do my job–the job of a parent of a children with diabetes.
I love your post and completely agree. I check my son through out the night as well and fell guilty everytime I dont want to get up. Like you said, this is our thing. I tell my son that all the time. Everyone has a "thing" and this is our "thing". Wonderful post, thanks for sharing, its good to know Im not alone out there in guilt land! :)
ReplyDeleteI had a co-worker tell me that it is my son's responsiblity (he is 15) to wake himself up and test. She later apologized when I guess she sensed that I was defensive. I sent her this photo along with an entry from you blog. Thank you Barb, for always being able to express life from a D parent's perspective. Patrice Palmer, Hamilton, ON
ReplyDelete