Tuesday, June 4, 2013

Its a BAD day for Da 'Beetus

"Mom you should have warned me!"
What was he talking about?
"Mom you should have warned me that we have a clinic appointment tomorrow! I would have done a lot better. Today was a really bad day for da 'beetus!"
He did know that he had a clinic appointment today. He simply chose to forget...like he forgot to test a number of key times throughout the day and like he forgot to bolus for his supper! It was a very bad day for "da beetus" alright!
I have downloaded his meter. I have written out his basal patterns and the result is that I don't want to know what his A1c is because I know it will be bad.  I also wonder what I have been thinking in looking at his basal patterns on the weekend versus the weekdays.  The weekdays are a mess. My first guilty thought was "its time to do some serious basal testing and fix this!"  My second thought was "why?"  This is my son's last full week of school.  Next week is an exam every morning and then slacking...I mean studying every afternoon. After that it is basically summer vacation, a time when we switch over to a permanent "weekend" basal pattern.
I hate the thought of our team looking at his readings. They are a mess but each one tells a story.  They say... "He didn't weigh his cereal."  "He eats constantly and there is no break to test basal patterns."  "He is working out and we are working at learning how exercise impacts his insulin needs."  "Mom has given up asking for data and works with the little information that she gets."
My son said that I should just let our team do their job. That would be great but they have no data either! How do you say adjust that basal or bolus ratio based on a reading that was taken 20 minutes AFTER he ate? Hopefully they will simply be on board with helping to get us a CGM in the fall or whenever the DexCom comes to market.  Perhaps they they will remind him to test if he wants his licence.
I hate clinic appointments. Why do they always feel like you are going into the principal's even though you know that you are doing your very best? Perhaps I will just go in, keep quiet and let my son handle all of this one...that would make things interesting! Wish us luck!
kid diabetes

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